Cannabis and childhood cancer: “It gave us hope that we could save our son”
eurpa

When their son was diagnosed with a rare brain tumour, Jessica and Simon Edwards turned to cannabis. They have chosen to share their story to address the stigma around its use in paediatric cancer. James Edwards was beautiful and full of life. He found joy in everything, sitting for hours completing jigsaw puzzles aimed at children twice his age. At the age of four he was a talented artist, one of his paintings was even included in the Young Artist Summer Show at the Royal Academy of Arts earlier this year. James was two-and-a half years old when he first began developing a squint in one of his eyes. Up until then he had been a healthy toddler, albeit a poor sleeper who occasionally suffered night terrors.  When he started to complain of headaches his parents took him to the doctor, who initially suggested James was making it up. Ten days later his leg was beginning to tremble and they were sent for an emergency MRI scan. The diagnosis was one of every parent’s worst nightmares.  James had diffuse intrinsic pontine glioma (DIPG), a rare, aggressive and incurable brain tumour.  He was rushed to hospital in Bristol, a three hour drive from the family’s home in Cornwall, where he underwent emergency surgery to relieve the pressure on his brain. “The next morning, the oncologist came around and told us that there was absolutely nothing that could be done,” says mum Jessica. “Some children only last weeks, but he gave him six to eight months maximum. We asked about every possible thing, including changing his diet. We were told it wouldn’t matter if we gave him nothing but chicken nuggets for the rest of his life.” She adds: “They tell you not to do your own research, but we knew we had to do our own thing.” James…

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