A Norwich family is having to fork out more than £400 a week for medicinal cannabis to stop their son having up to 100 seizures a day.

Little Charlie Hughes, who turns two next week, was diagnosed with West syndrome, or infantile spasms, at just 10 weeks old.

The condition is a severe type of epilepsy which affects just 400 children in the UK, and it means Charlie can have between 50 and 100 seizures a day. Since he has been taking doses of CBD oil every day, this has dropped to around 20 and the toddler – whose development was stuck at that of a six-month-old, has taken massive strides.

But because the drug is not available on the NHS – despite a change in the law last year to make it legal – parents Matt and Ali Hughes are having to pay £466 a week for a private prescription, and that could double as Charlie’s dose increases.

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reposted by Cannabis News World.

Original article by July 05, 2019 at 09:05PM