Charity steps in to support six-year-old whose access to medical cannabis is under threat

Charity steps in to support six-year-old whose access to medical cannabis is under threat
Cannabis Health News

A charity set up to help fund the cost of children’s medical cannabis prescriptions has stepped in to support a family who face losing access to their son’s oil. The family of six-year-old Oliver Rice, who has treatment-resistant epilepsy, has received a three-month financial grant from the charity Intractable Epilepsy to ensure he can continue accessing medical cannabis. Oliver has a private prescription for a cannabis oil known as Celixir20, costing £1,224 per month.   However due to a change in MHRA regulations Celixir20 will no longer be permitted for import from the end of the year, leaving patients like Oliver without access to the medication which has been working for them. The regulator announced in July that it would no longer be allowing imports from Israeli manufacturer, Bol Pharma, as its licence did not meet EU Good Manufacturing Practices (GMP) standards. Oliver’s mother, Michelle Rice, says she felt the best way forward was to wean him off Celixir20, but his condition has already deteriorated. “Oliver was administered the medical cannabis brand Celixir until August 2022. This had a profound beneficial effect on his seizure frequency and general wellbeing, but following warnings from the MHRA that import of Celixir may be blocked, we felt we had to wean Oliver off it,” explains Michelle. “This has already resulted in a severe deterioration of his condition. We understand that a number of other very ill children are also affected.” Oliver’s family are now looking to try Bedrocan oil, which is prescribed to several other children with intractable epilepsy in the UK, at the increased cost of £2,195 per month. Intractable Epilepsy was set up earlier this year to provide financial support for families like Oliver’s who have been unable to access their cannabis prescriptions through the NHS.  With the provision of its first…

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Source : Charity steps in to support six-year-old whose access to medical cannabis is under threat

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